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Fresno State's nap pods offer a relaxing way for students to recharge 0:55

Fresno State's nap pods offer a relaxing way for students to recharge

Campus comes to life at Fresno State as fall classes begin 2:00

Campus comes to life at Fresno State as fall classes begin

 Lawyer quizzes Brooke Ashjian about LGBT online comments 8:31

Lawyer quizzes Brooke Ashjian about LGBT online comments

Thieves use forklift to crash bank, steal ATM 0:35

Thieves use forklift to crash bank, steal ATM

'I am the first official kill' of far-right writers, Fresno State lecturer says 2:18

'I am the first official kill' of far-right writers, Fresno State lecturer says

Camera catches suspect hopping back into his car after he stashes loot in the back seat 1:50

Camera catches suspect hopping back into his car after he stashes loot in the back seat

Fishing for kelp bass: When was the last time you looked your bait in the eye? 2:59

Fishing for kelp bass: When was the last time you looked your bait in the eye?

Here's how to protect your home with defensible space 4:32

Here's how to protect your home with defensible space

Fresno State takes the field for final fall football scrimmage 1:22

Fresno State takes the field for final fall football scrimmage

Buying groceries in Fresno is just a click away 1:26

Buying groceries in Fresno is just a click away

  • 10-year-old Donovan Rivas teaches about Shprintzen-Goldberg syndrome

    Heart in the San Joaquin: Donovan Rivas has been diagnosed with Shprintzen-Goldberg Syndrome. A fundraiser is scheduled for May 6 at NorthPointe Community Church.

Heart in the San Joaquin: Donovan Rivas has been diagnosed with Shprintzen-Goldberg Syndrome. A fundraiser is scheduled for May 6 at NorthPointe Community Church. Eric Paul Zamora ezamora@fresnobee.com
Heart in the San Joaquin: Donovan Rivas has been diagnosed with Shprintzen-Goldberg Syndrome. A fundraiser is scheduled for May 6 at NorthPointe Community Church. Eric Paul Zamora ezamora@fresnobee.com

Fresno boy dances through the pain of a rare genetic disease

May 02, 2016 2:19 PM

About Carmen George

Carmen George

@carmengeorge

Carmen George is a Bee features writer. Born in the Valley and raised in the Sierra foothills, she has always cared about this place and its people. She believes in the power of your stories.

Contact her at (559) 441-6386 or on Twitter @carmengeorge